Henry's Story

Henry's Future

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If we live our life based on what Henry tells us, it promises to be joyful, full of laughter, dinosaur noises, and dancing. If we live our life based on what AHC tells us, it promises to be challenging, terrifying, and life threatening. ​


We are determined to develop a treatment as quickly as possible to ensure that Henry’s life can be as full as possible, and that his days are not dictated by mitigating symptoms, ambulance rides, and multiple hospital visits a month. ​


There are no words for us to express our gratitude to those who have been with us on this journey, and to those of you who are just beginning. Please help share our story and raise funds for this treatment For Henry. 


 AHC causes Henry to have severe life threatening symptoms near daily and it is progressive. We are in a race against time to save Henry.